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Pokie's Journey to 2009
August 2008
Thursday August 28, 2008
Posted by: pokie too at 8:25PM CST on August 28, 2008
Late in July I received notification that my application for a scholarship to Atlanta, Georgia had been accepted. What did this mean? Well I had sent a copy of my blog, "Today With Pokie Too and Parkinson's and Acute RA" http://justmeantiques.blogspot.com and ask to be considered for a $500 scholarship towards transportation to the Young Onset Parkinson's Network Conference. Little did I know that I would be accepted and what an awesome experience it would be.
People from all walks of life and from all points of the United States where there representing different nationalities, religions and races. Patients and doctors, authors and statesmen, all ate together, laughed and cried together. We were there to ask for a cure for this beast of a disease and they were there to tell us someone was noticing that Parkinson's was not just in the nursing homes. There were 37 year old fathers with3 year old sons who had Parkinson's. There were newscasters who had to change the course of their whole life because they had gotten this disease. Their was a single mom who had raised five kids and then came down with Parkinson's. She has had Parkinson's for 23 years and never met another person with it because she was in rural Georgia and the diagnoses was not given there. There was Parkinson's Disease presented in every possible way.....tremors and no tremors...walking and not walking...riving and some you would never know they had PD. For three days we were all one, united as a huge force trying to figure out what each of us could do to stop this now before it moved to the next generation. What do we do? We do not turn our heads when someone presents this disease like Michael J. Fox does. Look him in the eye and talk to him about it....It is not a sin to have Parkinson's. For me today, it is an honor to say God has given me this trial and I am attacking it with everything I have. There is one thing you must understand. When I walk a walk for Parkinson's I do not walk for me. I am 61 and I know a cure will not come in my time, but I have grandchildren fourteen, eight, four and 10 weeks and I hope in their day there will be no Parkinson's Disease to strike them down in there prime like Polio struck so many in an earlier time....When our youth were in danger a cure was found.....OUR YOUTH ARE IN DANGER...................pokie
Sunday August 24, 2008
Posted by: pokie too at 5:48PM CST on August 24, 2008
Three years ago I became a member of a rather elite gathering of friends when after a continual upsurge of pain and inability to walk forced me to start looking for and answer to my problem. The answer I may never find but the question that was presented to me was Charlene you have Parkinson's Disease and what are you going to do now? Little did I know the way my life was about to change and the journey I was to set out on I wandered around for a couple of years probably feeling sorry for myself and not really knowing what to do about it until my son left home to get married and left his old computer behind. One evening or more than likely morning, I was trying to find my email and up popped Patientslikeme.com. This in itself would be a very unlikely cross match but things get stranger as time goes on. I had no idea what a user name was let alone a url or any of those things. i didnnt know how to upload or download and had never been on a forum or in a chat room and didn't know the difference between them...and where did POKIE TOOcome from.. I'm thinking God was in total control that day of my every move.
After hours of trying to figure out what I was doing I made it to the forum and started reading the posts. I had never said anything like this in public, after all I am a 61 year old grandmother of five in a very small rural community. What was I doing?
That day was October 7th 2007 and in the past year this is how this site and Parkinson's have changed my life. In April of 2008 I was a proud member of Team Patientslikeme.com at the 2008 Parkinson's Unity Walk in New York City. I made all my arrangements and flew into New York for the first time in my life to start such a storehouse of memories and accumulate so many friends from all over this United States. We become very close on line just from the nature of our illness. When one is in extreme pain night after night you really appreciate some one to talk to who really understands where you are coming from. These friendships are cherished and usually go on for a life time. When we finally meet, if we can, it is as if we were family not strangers. There is always tears and a huge bear hug. From the time these friendships begin the pain seems to lessen and Parkinson's begins to loose its total hold on our bodies. As if going to the walk and all it's experiences was not enough, I began to blog on blogger.com. http://www.justmeantiques.com/ and in July won a scholarship from the Young Onset Parkinson's Assoc. to attend their conference in Atlanta, Georgia for three days.I think this is where I will start my story as we head back to NYC for the Unity Walk in April of 2009........
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About This Blog
A description of my journey to the 2009 Parkinson's Unity Walk in 2009, including interesting stories and bio's on our team members, our thoughts on our goals and dreams as we work toward our goal. We will be and currently are Team Patientslikeme.com. Our home is this website where we post daily. Our goal is to raise at least $25,000.00 this year for the cure.
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• Jessus, prayer, pain
• Christmas, rebirth • hope • support • caring • washington U • Parkinson's • PAN FORUM-2 • pokie too • Fayette Co, Ill • pokie too-3 • brother
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