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Pokie's Journey to 2009
Parkinson's
Sunday March 8, 2009
Posted by: pokie too at 8:36PM CST on March 8, 2009
WoW, I didn't realize how long I have been away from here. I have been drastically under the weather for almost a month and hope finally am seeing light at the end of the tunnel. I also hope it is not another freight train coming. My meds got off and the muscles tightened up and all of a sudden I was walking with GREAT difficulty. This is not good timing on my body's part because if I ever have a full schedule it is now and through most of the summer. I made an emergency trip to St. Lukes Friday and hopefully a meeting of the minds have provided me an out for you see I leave Saturday morning for five intense days in Washington,D.C. to lobby Congress at the 15th Annual Parkinson's Action Network Forum. I am now the 19th District coordinator and this will be my first trip....three days of training and two days on the Hill one on one. What better timing since the President signs the Stem Cell bill Monday Morning. I know how controversial this is but I personally think it's about time....so much mis information is out there. And we have lost some excellent future leaders for our country because the bill was vetoed in the first place. They will not save me.....I would be foolish to think they would move that fast, but they may save my grandchildren and that is all I ask.
With the new increase feeling of well being, I have pleadged to be in the fourground constantly . I would love for the world to know that people with Parkinson's Disease are productive , useful participants in society. I'll show you my pain, you show me a cure and fast. Cut the red tape and quit passing that almighty dollar. The cure is close. We all feel it. Bring it on! You as a responsible citizen can say "yes I knew they could do it" or you can say "yes I helped them do it" you choose. Your internet savvy or you wouldn't be here. Find a place donate for the cure $10.00 dollars goes a long way. Go to the sites and donate 2009 Parkinson's Unity Walk in New York, PAN, STL APDA, NPF, MJMF, PICK AND CHOOSE. I will be in Washington for everyone who has a Neurological Disorder saying, "Please help fund our needs" We are Struggling as is everyone else but we are your common man who made this country what it is and we are fighters to the end. We don't fly on fancy jets, our meals are our meds, which cost a fortune. We need special wheelchairs and walkers. We should not have to beg. I hope something I have said here has struck a cord and induced a sincere thought or concern. Great things can come from people with Parkinson's just ask Janet Reno, Ali, Davis Phenny, and of course Michael. Be a participant and not a watcher...it feels good...love pokie |
About This Blog
A description of my journey to the 2009 Parkinson's Unity Walk in 2009, including interesting stories and bio's on our team members, our thoughts on our goals and dreams as we work toward our goal. We will be and currently are Team Patientslikeme.com. Our home is this website where we post daily. Our goal is to raise at least $25,000.00 this year for the cure.
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Categories
• Jessus, prayer, pain
• Christmas, rebirth • hope • support • caring • washington U • Parkinson's • PAN FORUM-2 • pokie too • Fayette Co, Ill • pokie too-3 • brother
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