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Saturday July 4, 2009
I Hope Wonders Never Cease.....and Thanks
Posted by: pokie too at 11:14PM CST on July 4, 2009
I am forced, lately to sit in my recliner and stare into space wondering what will come with the next phone call or unexpected visitor.  By far today and yesterday beat anything I could have dreamed as I nodded out and napped.  You see my brother called yesterday from Denver. Colorado and said, " Sis,  they have found me a liver and I am due for surgery tomorrow morning at 5AM.  On the Fourth of July, not only the biggest holiday of the year, but my mom and dads 67th wedding anniversary.  There is only my brother and I and my mom left in my immediate family.  I was always his over protective big sis.  Who often embarrassed him more than I knew.  Just little things that as teens caused huge problems between us but melted away in later years and when I got Parkinson's Disease and started to travel and write we became very close.  For many years, four or five, he has been on the transplant list and I really had given up hope and then this week he had four possibilities in three days and yesterday was a go. When I talked to him before surgery, he sounded better than he has for years....Very ready to start a new life!  As of this evening. he has cleared the six to eight hour surgery and made it through recovery and is resting in his room.  All of his numbers are increasing and looking good.  It seems the live had attached to the skin and removal was very tricky and caused multiple areas for bleeding which may cause a second surgery tomorrow.

Ordinarily I would be in Denver by now, but as luck will have it I am medically grounded until at least the middle of next week so if you read this, could you say a small prayer for us....and remember this is still , by far the best country in the world and if you drove to see fire works or watched on television, was it not grand?  Thanks for being here for me to vent    love pokie


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Sunday January 4, 2009
New in Fayette County...
Posted by: pokie too at 1:24AM CST on January 4, 2009
I spent the day yesterday downloading copies of all my writing and organizing.  I read and reread the events of the last six months in total amazement of the things that had happened.  I think I will just bring up bits and pieces for a while and let everyone get caught up....

We in Fayette County are hungry for medical knowledge, as are most counties with inquisitive "baby boomers" not wanting to just take the diagnoses and go home with the meds and never question.  Something about the "Old Hippy" just never takes anything at face value and leaves it that way.

Several months back I gathered all my books and material and courage up and visited the Fayette County Hospital to find out if they had a support group for Neurological Disorders and if not did they want me to start one.

As luck would have it my first encounter was Kim Shanks, who got the ball rolling by furnishing me with a conference room , tv and refreshments.  We lined up a radio interview and the ball was rolling.   I have now been on the Morning Show with Dan Michaels twice and will be going back again  the 20th of this month.  If the weather wil just cooperate we can really get this launched in a big way .

Next on the Agenda will be trying to get a Medical Symposium together for spring.  We have doctors and health people who have expressed an interest to unite to use our physilities to the best with the most update programs....I seem  like an unlikely connection ...but over the last year have had many programs tested on me and have volumes of paperwork to distribute not to mention the people I have met in the Parkinson's Field to help.

The next six months should be very interesting as things come together for the area.

 


About This Blog
A description of my journey to the 2009 Parkinson's Unity Walk in 2009, including interesting stories and bio's on our team members, our thoughts on our goals and dreams as we work toward our goal. We will be and currently are Team Patientslikeme.com. Our home is this website where we post daily. Our goal is to raise at least $25,000.00 this year for the cure.

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