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Pokie's Journey to 2009
Jessus, prayer, pain
Wednesday November 26, 2008
Posted by: pokie too at 11:22AM CST on November 26, 2008
Last Thursday I rented a car an started quite an adventure that took me almost 1500 miles, through snow and sleet and freezing rain, to visit a very dear friend of mine named Dixie Pixie in Cleveland, Ohio. I first met Dixie last January on line on Patientslikeme.com. She had broken her arm and I had broken my leg and we shared a friend called Parkinson's Disease. She had been put in a Nursing Home for rehab and I was at home on the farm and both were wonderng what next could possibly happen. She would go to the nurses station at 11:00 pm each night and stand on her tip toes and with her good hand type with one finger to let me know how things were going. She was seventy four then and said,"She didn't like this place. It was full of old people." We would meet faithfully every night. We exchanged cards and soon telephone calls and soon she got to move across the street to assisted living where I put out a plea on the site and we bought her a new laptop for her own use when ever she wanted. In April we flew to New York City for the Unity Walk and met face to face for the first time. We ate New York pizza which is like no other, and hugged and kissed and became friends forever.
The year progressed on and I traveled many places looking for a cure and spreading the word that we needed help to cure this disease. About mid summer I decided to get up to see Dixie before the snow flew. The night I drove in he area received 20 inches of lake effect band snowing.....I never want to drive in that again but here I was in beautiful Cleveland ready to Celebrate in a big way .wth members of the site I was meeting for the first time. Many things are missed in the travels of a lifetime. Time is not taken in the rush to see the very small things that turn out to be so important and precious to living. Things are taken for granted and pushed aside that could bring us hors of pleasure when remembered later on
The next day was just such an experience. crammed packed with things she needed done like the post office , dentist and of course, a walmart run, Then off to the mall and new glasses and Barnes and Nobles. That evening Dixie and I were the guest of her son at the Cleveland Orchestra in Severance Hall. Dixie's son Hahns plays the french horn and so we had access to the orchestra afterwards. They played Anton Bruckner's Symphony No.8 in C minor. I had never been to a concert like this before and the music was so exciting that toward the end I so wanted to stand up and yell WHOOOOhowoooo. I contained myself but did give eveyone a hug and thanked them for the experience. That night we got our pajamas on and snuggled down in bed to discuss the events of the day and the direction our lives were taking . We got a phone call from California where Karen and Marian had just attended the Parkinson Princesses Honoring at Sunnyvale Clinic in California. They Were in a hotel with huge beds and with them both being five feet or so were laughing neither one of them could get on the beds and if they did their feet didn't touch the floor. Though thousands of miles away from each other and many years difference in age me played and laughed as if we were children once again.....anticipating a pillow fight or hidden chocolate...stached for just such an ocassion. Life takes funny turns but if you keep your eyes and ears open there is so much to be learned and enjoyed.....with or without Parkinson's.
Monday November 10, 2008
Posted by: pokie too at 6:08AM CST on November 10, 2008
It seems ever apparent , as time moves us on that so many things cause our wold to take shape and be misshapen. This morning I sit here trying with all my might to get my left hand to cooperate and let me type. It curls and it freezes, all terms a "Parkie" might know. It's my left arm that I do battle with and thank God for that, because you see I'm right handed and really that is the only truly functional part of me left. Parkinson's is a funny disease and it loves to play around . Some days you would barely know there was something so wrong and then there are days like today.. I take them one and all and know that my Journey has all been Googled for me many centuries before. Some mornings I lay tossing and turning in bed until i finally get up and grab my coffee and off I go to the computer as if possessed. As I start to type all the pain goes away and the answers and some questions form for a new day. This morning this small poem came from nowhere, so I copied it down and checked my email
Tell me sweet Jesus, give me a clue. How do I be such a leader of few? Give me direction as I stumble along, Trying to save and then moving on. Questions and questions come from all sides and so few answers do I find. So many needles in such huge haystacks,
Tell me sweet Jesus, tell me please do
Are the answers still out there? For the wanderings of so few. , So now on my second cup of coffee and well on my way....I'm ready to square off and face my new day.I can only hope that some of my tasks don'r include running or jumping . For those are two things my body refuses to address no matter what shape I get up in. Well i'll leave you with this rambling and wish you a good day on my Journey to 2009....
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About This Blog
A description of my journey to the 2009 Parkinson's Unity Walk in 2009, including interesting stories and bio's on our team members, our thoughts on our goals and dreams as we work toward our goal. We will be and currently are Team Patientslikeme.com. Our home is this website where we post daily. Our goal is to raise at least $25,000.00 this year for the cure.
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• Jessus, prayer, pain
• Christmas, rebirth • hope • support • caring • washington U • Parkinson's • PAN FORUM-2 • pokie too • Fayette Co, Ill • pokie too-3 • brother
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