|
Pokie's Journey to 2009
Five Minutes to Spare
Posted by:
charlene pryor on
October 27, 2009 at
12:28AM CST
For three years I have been actively fighting a disease that never gives up....Parkinson's Disease. Often people think, as do many doctors, medicate and keep them quiet and quiet they become. I was so lucky in 2006 to come across not only an excellent Neurologist but a website that gave me more than five minutes for treatment. Do you understand what I mean? When you walk into a doctors office and the stop watch starts ticking at the desk. Heaven forbid you bring in your own charts of the diseases progression on a daily bases. Should you not be allowed to discuss any new meds you have heard of and if you might try them? Is it possible that you may have researched during the,"I'll see you in three months" period and hit on something that will help you? You and I and the doctor know that Parkinson's is incurable but it can also move to or be misdiagnosed as MSA, ALS, MS and Lymes Disease. On a good day, you might not know I have anything but on a bad day ALS does not look too far away. My progression right now is rapid and I have even went into seizures. One may say'"Oh, well." and duck your head and hibernate waiting for the inevitable.....Why! Where I use to be able to type all night, two hours at a time is now great, yet I still write three blogs and post on Patientslikeme.com, and keep up with Facebook and take care of my 84 year old mom who has Alzheimers. No I am not superwoman. I care. I also believe that if we try hard enough we can make a differnce in not only our lives but the lives of the people around us, whether we have a termanal illness or not....love pokie
Send This | Categories:
|
About This Blog
A description of my journey to the 2009 Parkinson's Unity Walk in 2009, including interesting stories and bio's on our team members, our thoughts on our goals and dreams as we work toward our goal. We will be and currently are Team Patientslikeme.com. Our home is this website where we post daily. Our goal is to raise at least $25,000.00 this year for the cure.
Rate this Blog:
 0 rating(s)
Categories
• Jessus, prayer, pain
• unity quilt,support parkinson's • Christmas, rebirth • love • unity walk • hope • support • groups • caring • washington U • Parkinson's • PAN FORUM-2 • pokie too • Fayette Co, Ill • pokie too-3 • brother • love-2 • pokie too,the cove
Older Posts
Latest Entries
Loading...
Links
Loading...
 |
Leave a Message
Leave a Comment
Request as a Friend
